We Did It—and Then Some! Thank You for Your Incredible Support 💙
We are absolutely thrilled to share some incredible news—thanks to YOU, we have surpassed our Giving Tuesday goal! Together, we’ve raised an amazing $37,000 (and counting!) to support our mission and accelerate research toward a treatment and cure.
If you missed the opportunity to donate, it’s not too late! You can still contribute through our website and be part of this incredible journey. Every gift helps us push further toward our goals.
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Wednesday, January 22, 2025 1:00 pm – 2:30 pm Online via ZoomThe KOALA study will be available to an estimated 40 KAND patients in the days leading up to the conference, on July 22, 23, and…
Tuesday, July 22, 2025 – Thursday, July 24, 2025 In-personWe’re excited to announce the official dates for our 2025 KAND Conference! Mark your calendars for July 25-26, 2025, and plan to join us in…
Friday, July 25, 2025 – Saturday, July 26, 2025 In-person and Virtual
Hi KIF1A Families, Sloane received her forth ASO dose in October at 80mg. This dosing consisted of pre-dose bloodwork, research EEG, PT evaluation, and a cognitive evaluation. The biggest changes we have seen so far have been in her speech and cognitive awareness. She recently started counting to 10 on her own! We are noticing slightly…
Read More
“Su risa contagia de alegrĂa en su alrededor. (Her laughter spreads joy all around her.)”
Read More
