Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, July 23, 2026 12:30 pm – 2:00 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, August 13, 2026 12:30 pm – 2:00 pm Eastern Time ZoneJoin us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, August 19, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Happy June from KIF1A.ORG! Thank you all for reading about what we’ve been up to this month, including: 💛 Gia’s Closet 💛 Established At Boston Children’s Hospital for KIF1A Families We are incredibly proud to announce and support the launch of Gia’s Closet at Boston Children’s Hospital. Gia’s Closet will be a dedicated space filled…
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Boston Children’s Hospital – a top leader in pediatric care across the globe – will soon be launching the first-ever KIF1A NEXTGen Clinic, a groundbreaking center of excellence model program dedicated entirely to the clinical care of patients with KIF1A mutations. This clinic will bring together a specialized, multidisciplinary team of providers at BCH to…
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