Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, July 9, 2026 12:30 pm – 2:00 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, August 13, 2026 12:30 pm – 2:00 pm Eastern Time ZoneJoin us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, August 19, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Boston Children’s Hospital – a top leader in pediatric care across the globe – will soon be launching the first-ever KIF1A NEXTGen Clinic, a groundbreaking center of excellence model program dedicated entirely to the clinical care of patients with KIF1A mutations. This clinic will bring together a specialized, multidisciplinary team of providers at BCH to…
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Happy May from KIF1A.ORG! Thank you all for reading about what we’ve been up to this month, including: KIF1A Global Documentary Available for Steaming NOW! It is with great honor and excitement we share that a NEW documentary centered around our KIF1A community has been released for viewing! Join journalist Benjamin Hall in “Hope Starts…
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