2025 KAND Conference

Why:

Our bi-annual conference is a beacon of hope for the KAND community. It’s an opportunity to meet with fellow patients and families, engage with leading clinicians and researchers, and build relationships with our biotech partners. Together, we can make a difference.

• Patients and Families: Connect with others who understand your journey. Gain insights, share experiences, and find support.
• Clinicians and Researchers: Stay at the forefront of KAND research. Share your latest findings and learn from your peers.
• Biotech Partners: Understand the needs of our community. Collaborate with us to drive research and development.

Registration

Register now for the KAND Conference to join in person or virtually online—choose the option that works best for you!

Cost: Hosting a conference is a significant undertaking, and the costs can quickly add up—from venue rentals and technology to catering and materials. Despite these expenses, we believe that financial barriers should not prevent anyone from attending. To make our conference accessible to all, we are actively fundraising to cover the event’s costs. If you are in a position to contribute toward the per-person cost, your support would make a big difference. The registration form includes a variety of payment options so you can choose what works best for you. Thank you for helping us bring this important event to life!

Hotel Rooms

Our event will take place at Wyndham Beacon Hill Hotel in Boston, MA., USA. We have discounted rooms rates for attendees. You have to use this link to receive our discounted rate.

Research Participation: KOALA Study

Chung Lab at Boston Children’s Hospital will be offering KOALA study participation to our KIF1A patients prior to the conference from July 22-24, 2025. These assessments will take place both at the Boston Children’s Hospital campus and the Wyndham Beacon Hill Hotel in Boston, MA, USA where our conference will be held.

Everyone interested in KOALA participation needs to email ASCENDstudy@childrens.harvard.edu with the subject line: KOALA at the conference and let the team know when you plan to arrive in Boston. Please express your interest in participation early, so the research coordinators have all the information necessary to arrange assessments times, and get everyone the details they are looking for.

EMAIL ASCENDstudy@childrens.harvard.edu

More Details Coming Soon!

We’re currently putting together an exciting program for the 2025 KAND Conference. We know you’re eager for more information, and we promise it’s coming soon! We’re working hard to provide you with:

1. A comprehensive schedule of events
2. Information on keynote speakers and breakout sessions

Stay tuned to this page for updates. We can’t wait to see you at the conference!

Together, we are stronger. Together, we can find a treatment and cure for KAND.