Science Simplified: KAND ASO Case Study Results

Science Simplified: KAND ASO Case Study Results

While I think most of our readers will understand the enormity of today’s title, it’s worth stating explicitly that Susannah Rosen is on a huge journey. We often call members of our community Superheroes, but internally I default to another term Luke Rosen and advocates use often: Pioneers. In fact the Yellow Brick Road Project,…

Read More
Modeling Motor Cooperation: Dr. Kumiko Hayashi Interview

Modeling Motor Cooperation: Dr. Kumiko Hayashi Interview

Ahead of our 2022 Virtual KAND Family & Scientific Engagement Conference on August 13, 2022, KIF1A.ORG interviewed core KIF1A Research Network members to discuss their #relentless efforts to understand KIF1A and help KAND patients in this special “Meet the Research Network” series on the KIF1A.ORG blog.

Read More
The Biochemistry of KIF1A: Dr. Kristen Verhey Interview

The Biochemistry of KIF1A: Dr. Kristen Verhey Interview

Ahead of our 2022 Virtual KAND Family & Scientific Engagement Conference on August 13, 2022, KIF1A.ORG interviewed core KIF1A Research Network members to discuss their #relentless efforts to understand KIF1A and help KAND patients in this special “Meet the Research Network” series on the KIF1A.ORG blog.

Read More
Epilepsy, EEGs, and KAND: Dr. Tristan Sands Interview

Epilepsy, EEGs, and KAND: Dr. Tristan Sands Interview

Ahead of our 2022 Virtual KAND Family & Scientific Engagement Conference on August 13, 2022, KIF1A.ORG interviewed core KIF1A Research Network members to discuss their #relentless efforts to understand KIF1A and help KAND patients in this special “Meet the Research Network” series on the KIF1A.ORG blog.

Read More