#ScienceSaturday: June 11, 2022

#ScienceSaturday: June 11, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: June 4, 2022

#ScienceSaturday: June 4, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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May 2022 Highlights

May 2022 Highlights

The month of May was full of momentum! Our partners at Columbia University Irving Medical Center are now enrolling patients in the KOALA Study to advance KAND research and therapeutic development! Families: check out this newsletter to find out how to enroll and learn about how KIF1A.ORG can support your travel to New York City…

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#Science Saturday: May 28, 2022

#Science Saturday: May 28, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: May 21, 2022

#ScienceSaturday: May 21, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: May 14, 2022

#ScienceSaturday: May 14, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: May 7th, 2022

#ScienceSaturday: May 7th, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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Caspar’s Superhero Story

Caspar’s Superhero Story

“Our goal above all is to ensure that he has a full and happy life and knows every single day just how important, loved, and amazing he is. Caspar is our rock star and our superhero!”

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#ScienceSaturday: April 30, 2022

#ScienceSaturday: April 30, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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April 2022 Highlights

April 2022 Highlights

This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.

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