Share Your Story

Let us know your KIF1A superhero story and we’ll feature it on the KIF1A.ORG blog! Just complete the form below and tell us your story. It can be as short as one or two paragraphs. Check out other superhero stories on our blog for inspiration.

Photos and videos bring your story to life. Upload photos in the form below and email impact@kif1a.org to share your favorite video clip.

Here are some prompts to consider:

  • When was your superhero diagnosed with a KIF1A disorder?
  • How does KIF1A affect the daily life of your superhero? What are their challenges? Their strengths?
  • How does your superhero make you proud?
  • What hopes do you have for your superhero’s future?
  • Why is treatment important to you?

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Who is this KIF1A superhero story about?
Where is this superhero from?
Drop files here or
Accepted file types: jpg, png, jpeg, Max. file size: 10 MB, Max. files: 3.
    Upload at least one horizontal/landscape orientation photo for the header image of your superhero story!
    Your Name*
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