Rare Disease Day 2021

Text says I support Rare Disease Day 28 February 2021

Feb 28

Sunday, February 28, 2021 Everywhere
All Day

Join KIF1A.ORG this Rare Disease Day to make your voice heard and advance our mission to cure KIF1A Associated Neurological Disorder.

Rare Disease Day takes place on the last day of February each year to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. This is the reality for families affected by KIF1A Associated Neurological Disorder. We’re here to change that.

Want to help?

Tell your KIF1A story

Every KIF1A superhero has a story to tell. Click here to submit your superhero story for the KIF1A.ORG blog. If you want to take your story even farther through local and national news, contact us! We have volunteers ready to help craft your pitch, review talking points and prepare for interviews to amplify your voice.

Share a KIF1A story

Honor the KIF1A superhero in your life by sharing their story on social media for Rare Disease Day. Visit the KIF1A.ORG Blog to see our Superhero Story series. Don’t see your superhero? Nominate a superhero by contacting us.

Support our mission

At KIF1A.ORG, we strive to work as relentlessly as our superheroes to achieve our ultimate goal: find a cure for KIF1A Associated Neurological Disorder. Treatments are within reach, but two obstacles stand in our way: time and money. Donate today in honor of the KIF1A superhero in your life.

Thank you to every single KIF1A patient, caregiver, friend, researcher, clinician and supporter for being part of the KIF1A.ORG community. Contact us if you’d like to learn more about how you can support our mission this Rare Disease Day.